Living with a congenital heart defect and being autistic, I’ve been disabled my whole life, but until recently I didn’t like being called disabled.
I felt that because you couldn’t see my disability, I wasn’t “disabled enough” to use the word. I thought the label held me back.
Living with an invisible disability, any time my disability affected me and I had to remind others, my disability was dismissed by doctors, teachers, friends and acquaintances. “You look fine.” “You must not be really disabled.” “You’re exaggerating.” “You just want attention.” It made talking about my disability hard.
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