Although my parents were informed of my Poland syndrome diagnosis during infancy, I have always been shocked by the lack of detail they received about the condition.
All my mom knew was that the right side of my body was affected, and despite the noticeable deformities to the right side of my body, I’d live a mostly normal life.
As I’ve grown up, however, I’ve learned that part of that lack of information had to do with the fact that the condition is so rare that most doctors barely even learn about it in medical school.
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