people life feelings

When the Grief That Comes With Rare Disease Is Exhausting

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themighty.com

I think whether you have had a health condition since birth or whether you have acquired one throughout your life, I would say most people have moments/day/weeks/months of finding it emotionally challenging, and that’s totally OK.

It may cause anxiety due to your body changing or causing scary symptoms to having low moments of “why me,” or adapting to life where they may not be a cure to your illness or missing out on events with others – of course there are only a few examples.

However, I think what a lot of people go through with illness is grief. This may sound ridiculous because you haven’t lost someone, but you are grieving for the life you had planned but now are not able to have.

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