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When Hurricane COVID Hit Our Rare Disease Island

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themighty.com
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As parents of kids with disabilities, most of us have heard the “Welcome to Holland” analogy comparing our child’s birth to that of a vacation.

As parents you spend nine months reading books, planning and imagining all the different places you will visit when you get there, only to end up in a completely different country once your plane hits the ground.

Now, some parents have simply ended up in a country that most of us have heard of, such as Switzerland instead of Austria or Croatia instead of Italy.

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