If you have children, you know every month they ask, “is it almost my birthday?” Of course, some parents dread this question weekly, but for me, I would give anything to have my son ask me this very question.
Thirteen days before our son Carter’s fourth birthday, he was diagnosed with a devastating disease called Sanfilippo syndrome.
The best way to describe Sanfilippo is that it’s a childhood version of Alzheimer’s that will take his ability to remember people, places, and things.
Read more on themighty.com