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To Parents Whose Child Was Just Diagnosed With Muscular Dystrophy

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Dear parent of a newly diagnosed child, When our oldest son was 5 years old, we attended a Muscular Dystrophy Association (MDA) fundraising event.

There we met a mother whose 17-year-old son has muscular dystrophy. We chatted during dinner, and as we were leaving to go home she said, “I know you don’t want to be here, but welcome to the family.” So now as the (somewhat) experienced mother of children with congenital muscular dystrophy (CMD), I say to you: Welcome.

I know you didn’t plan to be here, but we are your new family. We will love you and your child! I know how overwhelming a diagnosis can be.

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