Family people emotions

The Word on a Healthcare Center Form That Spurred My Advocacy

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I want to share a story about how one Tweet can make a difference. A difference in the words used, the respect given to people with developmental disabilities and how families are treated by large organizations.

I recently was asked to complete an intake form in advance of an assessment at a healthcare center. I printed off the form, made a cup of coffee and sat down to fill out this lengthy document.

As I came to the section related to family medical history, my eyes popped out of my head. Sitting on my couch in 2021, the R-word appeared in a list of medical conditions that included allergies, diabetes and migraines.

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