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The Vicious Cycle of Rare Disease and Mental Health

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Rare disease affects approximately 1 in 15 people worldwide, according to the World Health Organization; within this approximately 69% have reported having depression and 82% have reported experiencing anxiety and stress.

This is no surprise to me due to both my own experience and some of my friends’ experiences. However, mental health diagnosis due to rare disease is much more complicated than it sounds.

My mental health “journey” began in January 2018 when I was experiencing low mood, lack of motivation and some really confusing thoughts.

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