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The 'Otherness' We Experience as a Family With Kids Who Have a Rare Disease

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Over the summer, I contacted the boys’ pediatrician to get her advice about sending them back to school this fall since our youngest was not old enough to be vaccinated.

Her nurse responded that they recommend all kids to attend school in person this fall unless they are high risk. Since our boys fall into the high-risk category, she told me to contact their specialists.

This past spring, an acquaintance (and pediatrician) ranted on social media that all kids should be back in school immediately since they were less affected by COVID-19 (this was before the Delta variant) and their mental health was suffering.

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Study: COVID-19 Disproportionately Harms Youth with ADHD
January 31, 2022 COVID-19 has disproportionately damaged the lives and behaviors of children with ADHD, according to a study recently published in the Journal of Attention Disorders.1 Though children with ADHD are no more likely than their peers to test positive for COVID-19, they are more likely to experience pandemic-related sleep problems, family conflict, fear of infection, and academic setbacks, the research found.A groundbreaking study on the broader mental health implications of the pandemic, the research examined 620 youth with ADHD and 614 individually matched controls who participated in the Adolescent Brain and Cognitive Development study to determine their risk for COVID-19 and their differing experiences with pandemic life, among other factors.Though their caregivers reported observing significantly more COVID-19 symptoms, children with ADHD were no more likely to test positive for COVID-19 than were children without the disorder.  When compared to controls, children with ADHD were more likely to break rules related to COVID-19 restrictions and to experience the following:No significant differences were found between the two groups regarding using screens, engaging in physical exercise, and following a daily schedule.The authors of the study found that children with ADHD were less responsive to protective environmental variables like parental monitoring and school engagement, and they concluded that students with ADHD may need more specialized support during in-person school.
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