My identity over the last 29 years has been directly influenced by family. Like all families, we support one another, rely on each other and grow together.
But what sets us apart is something very distinct. My brother Nigel was born with a very rare condition called linear nevus sebaceous syndrome.
Often characterized by unusual skin lesions, this condition, at its rarest form, also includes severe cognitive delays and in my brother’s case, epilepsy.
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