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The Choices I Make Because of My Child's Rare Disease Aren't About You

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When I have to cancel plans last minute, it’s not about you. When I can’t commit to going somewhere because I do not want to impose on the few people who can watch my son, it’s not about you.

When I don’t call to check in or have a delayed response to something important in your life, it’s not about you. When my son can’t go somewhere or do something with you or others, it’s not about you.

When I take too long to return a call or a text, it’s not about you. When I am tired, cranky, overwhelmed, angry, or sad, it’s not about you.

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