April 22 was Marie’s 16th birthday. Sweet Sixteens are one of those milestone-type birthdays that you want to celebrate and memorialize.
I am writing about Marie’s birthday weekend to do both, but I am also trying to capture what is difficult and what is beautiful about this life with Marie and our journey with Ring14 syndrome.
Planning What should we get Marie for this big birthday? What will she value? What will make her feel loved and treasured? How do we mark this milestone as truly special?
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