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Making Today Better Than Yesterday While Living With Centronuclear Myopathy

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Some of my most vivid memories from childhood involve getting yelled at by my physical education teacher. While I excelled academically during school, I could never run like my classmates.

I was unable to do pullups and was afraid of getting knocked down and embarrassed whenever we played football. My teacher blamed this on me being “lazy.” I was even told to run extra laps around the high school track while the rest of my class watched — it was my punishment for being disobedient.

I did not know until I was in my late 30s that my “laziness” was actually caused by a form of centronuclear myopathy (CNM). Knowing what I know now about CNM, the diagnosis makes perfect sense.

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