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Overcoming the Challenges of Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral muscular dystrophy (FSHD). I heard these words for the first time over 30 years ago, when I was diagnosed at age 16. One would think I would be devastated, but I was actually a bit relieved! At least my diagnosis gave me an explanation for why it was so difficult for me to make the throw from third base to first while playing Babe Ruth League baseball in Quincy, Massachusetts. The diagnosis justified the struggles I had building muscle while I was competing on the Boston College High School wrestling team. I finally understood why I had trouble smiling, which caused many people to ask me if I was “unhappy” or tell me I was “too serious.”
