The mountain is still there, and I am still climbing. But this climb has been made easier by my amazing brilliant empathetic professor of neurology, and my amazing 24/7 caregiver and wife.
And now I finally have a diagnosis, stiff person syndrome, along with bradykinesia — both progressive and incurable. I have epileptic seizures that go with that.
I’m fully awake, fully conscious, just a prisoner in my own body. Although the seizures are short in duration, they are terrifying and horrendous.
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