My Neuromyelitis Optica life feelings weakness My Neuromyelitis Optica

An Open Letter to My Neuromyelitis Optica Spectrum Disorder

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themighty.com

Dear NMOSD, If I could write a letter describing every single last way you’ve changed me, I could fill up a scroll. Even then, there wouldn’t be enough words to describe how, when you unexpectedly came into my life, you plowed through the path I had so delicately made for myself.

When you first made your sneaky and disrupting presence, I thought you would go away. The way you inflicted harm on my body so quickly was life shattering.

My perception of what I thought what life was about seems to have shifted into an entirely new universe. From the the pain and agony I felt when I first met you, to the many nights you kept me awake, and the many days that I so frequently slept through, you’ve too often been by my side, a most unwelcome companion.

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